Our experience suggests that carers are often left out of end of life care discussions, despite their involvement on a day-to-day level. We have produced two checklists, one for carers and one for GPs, to make sure that carers have the information they need. They are designed to be used together.
The carers’ checklist includes, for example, talking to the person they care for about the care they would like; and knowing where they would like to be when they die. The GPs’ checklist includes prompts to make sure carers understand what is happening and what to expect; and to signpost them to organisations who can give support.