Going into hospital is a worrying time. If you are a carer you have the added worry of thinking about what will happen to the person you care for if you go into hospital.
If the person you care for goes into hospital you may intend to carry on providing some care whilst they are in hospital. Far from giving you a break from caring, there are often extra responsibilities you have to take on.
However, it is worth bearing in mind that hospital visiting can be tiring and it may be good to have a break from visiting. Some carers use the hospital admission as a break from caring so that they can recharge their batteries.
Whichever situation you are in, it’s not an easy time and you are likely to have important decisions to make.
If you need advice, information or emotional support during a hospital admission or discharge, please speak to our Hospital Liaison Workers. If you wish to make a complaint or raise a concern about a hospital admission or discharge, you can speak to the Patient Advisory and Liaison Service at the relevant NHS Trust:
What will happen to the person I care for if I have to go into hospital?
The person I care for is in hospital. Should I tell the staff that I am a carer?
What support can I get as a carer?
Help with car parking costs
The person I care for has dementia and I am really worried about how being in hospital will affect them
A sudden hospital admission
What will happen after the person I care for is discharged
The person I care for is in hospital as a result of their mental health
Our Hospital Liaison Workers
Our Hospital Admission Checklist
Admission to hospital will usually either be in a planned way or as an emergency. If you know you are going to be admitted and there is no-one else who can take over the care and support of the person you care for, contact your local council’s duty desk. They will discuss options open to you and can set up alternative care arrangements. If you are admitted as an emergency, tell someone in the hospital and they will contact the local council on your behalf. If you have a Carers Emergency card, this will inform ambulance or hospital staff that you are a carer. They can alert the 24 hour Emergency Call Centre.
If you, or the person you care for have not been asked, then tell staff you are a carer. As long as the person you care for consents you should be included in any meetings and planning about their care and discharge. If you have a Lasting Power of Attorney (Health and Welfare), you will need to make ward staff aware of this and they will need to see the original.
The Carers Charter covers all hospitals in Bristol and South Gloucestershire and was developed in consultation with carers. It sets out what you can expect from them as a carer.
Carers Support Centre has a team of Hospital Carer Liaison Workers who work at the Bristol Royal Infirmary (BRI) and Southmead Hospital. They provide one-to-one support for carers whilst they, or the person they care for, are in hospital.
Southmead Hospital runs a Carers Support Scheme. If you spend a minimum of three hours per day of the equivalent of 20 hours or more over a seven day period providing support to a patient, you may be entitled to a complimentary car parking permit and access to the staff restaurant.
To find out more about this scheme ask on the ward or talk to a Carers Support Centre hospital liaison worker.
Ask to complete an ‘All About me’ form which provides staff with information about the person you care for. It helps the ward to understand the person you care for. For example it could include information about what they like to be called and their normal routines.
If it would help you, ask if you can speak to a member of the Hospital Dementia Team. Both trusts have dementia teams. These are small teams with medical, nursing and training leads, which support patients with dementia and their families.
At the BRI, contact the Dementia Team on 0117 342 1708 or email Dementia.Team@uhbw.nhs.uk. At Southmead Hospital, please contact Dementiacare@nbt.nhs.uk or call 0117 414 9066.
If the person you care for is agitated, ask about a twiddle muff. These are knitted/ crocheted muffs and blankets, which provide a source of visual, tactile and sensory stimulation.
Both trusts fully support John’s Campaign. Carers of people with dementia have the choice to stay in hospital with the person they care for. If you would like to stay on the ward, please let the ward staff know and they should be happy to accommodate you.
A visual identification system the Forget-Me-Not is used in the hospital to make all staff aware that someone has a diagnosis of dementia, or has a current cognitive impairment. These will be displayed on the patient board, by the bedside and in patient notes.
If someone has been perfectly well, and then suddenly admitted to hospital you are likely to be in shock and will probably be experiencing all kinds of emotions and feelings. You may be facing important decisions and may be considering taking on this caring role for the first time and don’t know what to expect. Try to remember that it is your choice whether or not to take on a caring role. It’s important to think about the amount of support you are able to provide and what help you might need. It is important for you to consider how your caring role is likely to affect your life and wellbeing and the impact it will have on your own life, work and relationships.
There may be lots of practical things to sort out, like money and work as well as dealing with the emotional side of things. It’s important to think about your own health and to get support for yourself. You may need to talk to your employer, get benefits advice, get some practical support and find someone you can talk to about your own feelings.
The Hospitals will start discharge planning as soon as someone is admitted to hospital. Once the person you care for is considered fit to be discharged, it will either be decided that they need a further period of assessment in a Nursing Home or rehabilitation in a community based setting or they are well enough to return home with or without some support. Carers should be included in this decision. You should not be expected to take on additional caring or become a carer for the first time. You will need to be clear and realistic about what you can and can’t do.
If the person you care for is a voluntary patient they are free to leave if they want to. However, if they are detained under the Mental Health Act there are special rules that apply to the discharge procedure. There should be a meeting to assess the support they are going to need in a community setting. They may be referred to the Community Mental Health Team (CMHT). If they are under 18 they may be referred to the Child and Adolescents Mental health service (CAMHS). If they are over 65 they may be referred to the older person Community Mental Health Team (CMHT).
If the person you care for has long-term complex needs they may come under something called the Care Programme Approach (CPA). As a carer you should be involved in this as long as the person that you care for consents. The CPA means that the person should have regular review of their care plan and the support of a Care Programme coordinator amongst other things. Find out more about the CPA on Minds website.
Our Hospital Liaison Workers
Our Hospital Liaison Workers can provide one-to-one support for you whilst you, or the person you care for, are in hospital. Find out more and contact them here.