Learning disability carer survey

If you are a carer of somebody with a learning disability, you can take a survey to support research into the quality and cost of supported living and residential care. It should take around 30 minutes of your time.

The National Development Team for Inclusion (NDTi) is researching housing services (supported living and residential care) for people with learning disabilities. They have done focus groups with people with learning disabilities and their carers, to find out what is important to them.

Carers told them about the ways they support a relative with a learning disability in different housing settings and shared their concerns about what would happen – and does happen to people –without their help. NDTi understand the important role of carers. You can read about their key findings here.

To explore this further NDTi have created a questionnaire, based on what family carers have told them.  Sharing your views and experiences will help them understand the contribution of carers in different housing settings. The findings of this survey will help NDTi measure the contribution of carers, in terms of time and money spent supporting the cared for person. You can find out more about NDTi’s research here.

If you care for someone with a learning disability and want to make your views heard, please take their survey. If you would prefer to fill out a paper survey or give your answers via telephone – or if you have any questions – please contact Geraldine Cooney on 01225 789135.

The Blue Badge scheme has been extended to people with “hidden disabilities”

If you are caring for someone with a “hidden disability”, such as a learning disability, autism or a mental health condition, you may now be entitled to a Blue Badge. A Blue Badge allows you to park in some places other people can’t and sometimes get free or discounted parking.

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Bristol LD carers discussion group June 18

There will be a lunch discussion group for Bristol carers of an adult with a learning disability at Carers Support Centre on Tuesday 18th June, 10.30am–12.30pm, with sandwich lunch provided.

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Demands on LD carers are unrelenting

We have 2 specialist workers who support carers of adults with learning disabilities (LD) across Bristol and South Gloucestershire. In the past this work was funded by statutory services, however since April 2018 we have had to find this funding ourselves from alternative sources. This costs us £45,000 per year; and we are extremely grateful to the charitable trusts who have supported us so far. In the last year, funds from John James Bristol Foundation and James Tudor Foundation have helped us towards the costs of delivering this vital specialist support. We will continue trying to raise funds to keep this valuable service going.

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Bristol Assistive Technology Service

Bristol City Council are providing a new service called the Assistive Technology Service to support people with a learning disability and/or autism to live more independently with the help of assistive technology (AT). To deliver this the council will be working in partnership with WE care and Repair and Hft.

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New eligibility criteria for blue badge

The government has announced that the eligibility criteria for the blue badge scheme will be changing to include those with ‘hidden’ disabilities. This will benefit people who are autistic or have a learning disability, dementia or a mental illness.

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